Doctors treating a brain-damaged baby with a terminal wasting disease would have told his parents that &ldquo;nothing more could be done&rdquo;, and their son would have died &ldquo;peacefully and unremarked&rdquo;. If there had been a doctor on the other side of the world willing to try an experimental treatment, Charlie&rsquo;s parents would never have known about it; and &ldquo;even if they had, they would have deferred to British doctors&rdquo;. But attitudes have changed, thanks to &ldquo;medical progress, social media, globalisation and the decline of deference&rdquo;. These days, people believe in medical miracles, and search the world for them using the internet. Yet at the same time, they distrust the judgement of doctors, and are prepared to go to court to challenge them. And it usually ends in &ldquo;heartache&rdquo; for everyone.Connie Yates and Chris Gard, Charlie&rsquo;s &ldquo;battling, devoted parents&rdquo;, have done nothing but &ldquo;behave like human beings in an increasingly inhuman world&rdquo;, said Giles Fraser in The Guardian. The state &ndash; via the NHS and the courts &ndash; denied them the opportunity to take their baby overseas for experimental treatment; ordered that his life support be withdrawn; and&nbsp;then refused to let them take him home for his final days. Instead, he died in a hospice last week, his parents mourning that they had been denied their &ldquo;final wish&rdquo;. Judges and medical experts &ndash; people &ldquo;who have never smelled the specific perfume of Charlie&rsquo;s neck&rdquo;, never &ldquo;held him tight or wept and prayed over his welfare&rdquo; &ndash; decided his fate, instead of the people who loved him most: his parents.Parental love is not always wise or altruistic, said Janice Turner in The Times. On the contrary: it is &ldquo;the most selfish love of all&rdquo;. It is powered by the Darwinian need to perpetuate our genes, and by a kind of existential fear for ourselves. In a post-religious world, &ldquo;our children are our household gods&rdquo;. If they die, &ldquo;we don&rsquo;t believe we will see them again in some better place: they are just gone and we are left undone&rdquo;. So we will do anything to hang onto them. The Gards dragged a children&rsquo;s hospital through the courts for five months, diverted resources away from babies with a better chance of life, and whipped up a media storm that resulted in death threats against doctors. All the while, their son lay strapped to machinery, unable to move or breathe unaided, dosed with morphine to alleviate his suffering. The &ldquo;pure force of parental love&rdquo; can be terribly cruel.

Charlie Gard: The Force Of Parental Love

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