At that time, I didn't know anybody who had Parkinson's. Neither did I know anything about it. But I've been with the same doctor since then and it has made a huge difference. Even though there wasn't much out information out there, she was a big help. Basically, I was in denial for about five years, trying to hide the tremor. Because I was tremordominant my doctor said I had a slower developing form of Parkinson's. Despite initial denial, I eventually embraced my condition, prompted by others noticing my symptoms. Ten years ago, I started a blog and Facebook page aimed at sharing information about Parkinson's. Attending a Fox Foundation symposium in Los Angeles really got me going on my journey to become a Parkinson's advocate. I also attended an event in New Jersey where I was one of only 25 women from all around the country. We were asked to do something in our community when we got home. So, I pulled together the women that I knew in Los Angeles with Parkinson's and we started meeting by organizing fun events-boxing, yoga, speakers on all types of subjects. The group quickly blossomed into a thriving community which adapted seamlessly to Zoom during the pandemic and continued twice per month since then.
BEST TRAVEL EXPERIENCE
This story is from the April 2024 edition of Accessible Journeys.
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This story is from the April 2024 edition of Accessible Journeys.
Start your 7-day Magzter GOLD free trial to access thousands of curated premium stories, and 9,000+ magazines and newspapers.
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